I had this same rant a couple of weeks ago , well , not this actual rant but it was about the same subject.
Fighting ignorance is a long fight and so here I am again.
The thing is , the thing that’s really riled me is that so many people ( so many) think Tourette’s is a joke.
Well it’s fucking not. that’s not me having Tourette’s there , that’s just me swearing because swearing isn’t ‘ like having Tourette’s ‘
A couple of weeks ago it was the ” find your Tourette’s name “crap that I kept seeing on Facebook. But it’s not just that it’s those pictures that say ” talking on the phone to someone with kids is like talking to someone with Tourette’s ” no it isn’t !! and those that say ” since having children I’ve developed mild Tourette’s ” no you haven’t !
Nothing is like having Tourette’s ,
Tourette’s syndrome is a neurological condition (affecting the brain and nervous system) that is characterised by a combination of involuntary noises and movements called tics.
( taken from the nhs choices website)
It’s uncomfortable and painful and often embarrassing. It’s frustrating and upsetting .
Sometimes you need medication to make it less so.
That’s what it is.
It isn’t funny , it’s not a joke , it’s not trivial.
Not everyone with Tourette’s swears. It’s much more than that. It’s words , noises , sounds , movements , jerks , spasms , tics . Randomly , constantly .
Swearing a lot and then saying ” it’s like I’ve got Tourette’s ” is ( in my opinion ) disrespectful to people that do have it. It also shows a great deal of ignorance about what Tourette’s is.
I have two boys with Tourette’s. We don’t sit here with a chip on our shoulders crying because of the tragedy of Tourette’s , my boys will often laugh at their own tics but they do have Tourette’s and that’s how they cope with it.
I don’t get annoyed about this because I’m bitter that my boys have it , I get annoyed because of ignorance .
Making jokes about Tourette’s when you don’t have it , have no experience of it and don’t even understand it and comparing trivial stupid things to it are part of the reason why people don’t actually understand it and why people think it is just a trivial thing .
It’s not funny.